Download Cancer-Related Genetic Testing and Counseling by Institute of Medicine, National Cancer Policy Forum PDF

By Institute of Medicine, National Cancer Policy Forum

These court cases of a workshop offered to the Institute of Medicine's (IOM) nationwide melanoma coverage discussion board on March 30, 2007, are the results of discussion board discussions approximately genetic trying out and counseling at its conferences on June sixteen and October 30, 2006. these discussions, led through discussion board individuals Betty Ferrell and Patricia Ganz, famous that genetic trying out and counseling have gotten extra complicated and critical for informing sufferers and households of hazards and merits of definite classes of motion, and but prepared specialist courses are briefly supply.

The material consists of not just the medical and medical points but in addition staff and compensation matters, between others. Drs. Ferrell and Ganz proposed that the discussion board may supply an invaluable evaluate of a few of the very important implications of those matters by means of preserving and reporting a workshop at the topic. They volunteered to paintings with employees to prepare and lead the sort of workshop. The schedule for the workshop is reproduced within the appendix to those lawsuits. It contains the displays of the invited audio system and the reviews of audio system, discussion board individuals, and others in attendance as transcribed and edited to dispose of redundancies, grammatical error, and another way cause them to extra readable. Cancer-Related Genetic trying out and Counseling : Workshop Proceedings summarizes the workshop.

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Extra resources for Cancer-Related Genetic Testing and Counseling

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Copyright © National Academy of Sciences. All rights reserved. html 34 cancer-RELATED GENETIC TESTING AND COUNSELING Ms. Javitt: The final example is the nutrigenetic test that makes diet and lifestyle recommendations based on testing a 19-gene panel. One of the groups is for antioxidant detoxification, looking at variants in six different genes. The claim is that these variants may reduce removal of toxins from the body that can be associated with cancer. Based on your profile, they recommend that you eat certain vegetables and fruits and avoid tobacco smoke or stop smoking.

Dr. Thomas Burish, Provost, Notre Dame University: Experience has shown that whenever someone has the appellation counselor—sex counselor, marriage counselor, psychology counselor, genetic counselor—lots of unqualified people call themselves counselors, which makes some kind of certification essential so the public can distinguish people who are trained as counselors and those who are not. How big a problem is this in genetic counseling, and what is the solution to it? Ms. Bennett: I think it is a big problem because of the commercial push for testing.

Whether labs can do DTC business, give a patient the results, get a sample from a patient without a provider intermediary—those are questions of state law. Is DTC testing good or bad? There are arguments in favor of it and arguments against it, and I have tried to identify the issues. There is certainly a concern about false and misleading claims, and I have presented some examples. There may be a lack of counseling and context because there is no requirement that a company offering DTC tests provide counseling, although some do.

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